We had been sent home to die. At least that’s how it felt when our oncologist suggested hospice care. They don’t want to do chemo because his liver is not functioning. And we had a week of preparing for death. One night we laid in bed and talked about ashes.
But then I started thinking “what if?”. What if we can get his liver functioning? I’ve seen so many stories online in various health chat rooms of people with cirrhosis of the liver, and being on transplant lists, and livers riddled with tumors. I’ve read so many stories of the wonders of Alpha Lipoic Acid and Milk Thistle. One story I read was about a guy who had been told that he would die without a liver transplant. He walked with a cane. He started a regiment of ALA and Milk Thistle and now he runs every day. It’s hope I can buy into.
Last Thursday they went and replaced his drains with bigger ones. The procedure left him in a lot of pain and he still didn’t want to eat or drink anything and the last few days have been a constant battle. Battling the need and inability to take in nutrients. Battling pain. Battling to move. Battling to maintain some sort of hope. I begin to feel the darker worries set in. I worry my will for him to live is stronger than his own. I worry that tomorrow will be worse than today. I worry that I just don’t have enough super human strength to fix him.
And then we’ll have mornings like today. The kind of morning where the pain is manageable. The kind of morning where I get him to eat a whole carrot and some grapes and drink half a glass of Gatorade. The kind of morning where I feel like we’ve done something successfully. And we start to chug up that hill preparing for the next drop, curve or twist of the ride. And just maybe tomorrow will be better than today.






Mornings like this…they’re saviors aren’t they? It’s not just your will for him to live. Mine’s mixed in there too. My super witch powers are merged with yours. I believe. I believe in this. I hate the pain. I hate the twists and turns of it all…but I believe that at the end we’ll all be laughing with our arms raised screaming NO HANDS!!! NO HANDS!!!
i believe it.
This, exactly.
Life makes the scariest coasters. Disney could not ever hope to match them.
I’m hoping with all of my heart that this is the first of MANY good mornings.
Still here. Still thinking about you guys. Still worried for y’all.
Much love and healing thoughts.
Keeping you in my prayers
Oh, that first line made my heart drop. I’m thinking of you and holding you and Chris in my heart.
my thoughts and prayers are with you both!
From a complete stranger, sending you thoughts and prayers to have the strength to make it through.
Keeping your family close to my heart and in my thoughts..
Surrounding you with all of the love, strength and positivity that I have to offer..
May you have many more mornings where you’re climbing to bright beautiful tomorrows…
xo
Here’s to more of these mornings for you guys.
My heart is breaking for both of you but know that I’m Praying for ya’ll every day!!! Praying for your strength as well as Chris’s. Praying for more good days and most of all Praying for a miracle!!!
Thank goodness for the good times. Your strength is amazing, please be sure to take care of yourself too. Sending healing wishes to both of you.
Wishing you everything you need right now, strength and patience and love… all these things that it sounds like you have plenty of already. There’s no such thing as too much.
I am so, so sorry for what you are going through.
Came from twitter – so sorry about the roller coaster and hoping more mornings like this happen.
I came here via SueBob and could not read this without commenting my true sorrow for all that you are going through. I can feel your love for your husband literally coming in waves off my screen and I truly hope that you all have all the love and support possible. xo
I never much liked roller coasters. I’ll be praying that yours evens out a bit.
You don’t know me but I do know how hard it is to have a loved one in hospice and not know what to do or what to hope for next. I wish you both strength and hope and peace.
I too came here via SueBob. I couldn’t read this without letting you know how truly sorry I am that you even have to take this roller coaster ride. Big hugs to you.
I came here from Kizzy. I would just say go ahead and buy into that hope with all your heart and don’t let go. It will keep you going. xo
Here’s hoping tomorrow is indeed better.
(Kizz sent me.)
Kizz sent me your way, and I wanted to let you know you’re in my thoughts.
I’m Hoping you have more and more positive mornings. You both are in my thoughts and prayers, and I’m sending so many positive vibes for healing. But mostly know Cindy that I’m surrounding you both with love and peace.
e Hugs
love and prayers, may the good ones appear often, and may you remember them when they’re not there. hugs to you both.
I am stage 4 myself and I can tell you from my experience that as long as you have hope and prayer your not out of the game. True that all people die but you hope for a little time with quality so any day you can get value out of cherish and don’t give up hope and prayer. Try and understand that there is a plan and when its time its for a reason. Bless you both.
Wow, came here from Maggie’s twitter and didn’t expect this…my best friend has stage four colon cancer and is being discharged from the hospital tomorrow. Praying for you both.
We need that guy from “The Green Mile”
Hey I’ve been thinking about you guys a lot knowing exactly what you are going through. Cherish the good days. I got two weeks with my dad. I don’t think I enjoyed those days as much as I should have and on his last I couldn’t let him know how much I loved him.Make each day count as much for you as for Chris.
Dear Cindy and Chris…am praying for complete healing, strength to fight, painless days and nights, and peace in the midst of this storm. I love you…and so does God!
Sandy